As many of you know I struggle with Parkinson’s disease. In the years since my diagnoses so much has changed either because of me or in spite of me… work, moving, kids, meeting new friends and renewing old ones. Never was I one to try and deny my circumstances for it was cathartic just to know this is what ails me, now what can I do. Sure I tried to conceal my tremors and the way I walked but time has a way of liberating all secrets. In the guise of this generative, physical and cognitive condition I do battle with the dragon time and time again for time comes to the aid of every decision under heaven, be it an angel in heaven or devil in hell. There is much truth in this as Perceval and the ailing Fisher King, seeking the question, “what ails you, Sir, what ails you”? Compassion flowering the good earth. Perhaps it is also a bit like Nathaniel Hawthorne wrote, “man must not distance his brotherhood even with the worse of men.” For sometimes your the dragon and sometimes not.
copyright jc2019-9… images by pixabee
Moving in quiet desperation, Keeping an eye on the holy land, A hypothetical destination, Say who is this walking man. -James Taylor
Its been a while since I’ve posted anything about Parkinson’s disease for this blog. Can you beleive it’s been 6 years that I was diagnosed! My page on PD has a complete list of post consecutively written almost as fast as changes were occurring in real time in my life. Thank you for reading those early writings for they make up the heart and soul of this blog. As for as I’m concerned, my personal goal in writing is to always leave the reader with words more positive than when they started reading. For what is life if not to lift us, one and another to all that heaven will allow.
Having PD can result in numerous conditions the body must cope with. Since Parkinson’s is an absence of dopamine in the body and dopamine is used everywhere in the body thus no two shades of the disease are ever totally the same physically and mentally. And symptoms can show up any day or take years to develop.
I became aware of Parkinson’s when my right hand began to shake violently, an effect called tremor. Drugs were’sable to control it. What keeps me occupied at this particular junction is the ability to walk or a lack of it as it was before my body becomes stiff. Now loosening the body is every day, a day-long practice. These exercises are like medicine since my abilities with my legs and feet have seriously been compromised. My feet shuffle along as I balance myself with a cane. It requires constant mindfulness to walk like a normal person, so mindfulness is more than just a Buddhist practice to me, it is the ability to walk. Yes, like what is normal for me.
There is one person I’m especially indebted to who is practically rewriting the book on walking with Parkinson’s and that is my physical therapist. She rocks, Thanks…jc
©jc2019-9… Image by Pixabay
Every experience, no matter how bad it seems, holds within it a blessing of some kind.
The goal is to find it. -Buddha
It’s been awhile since I’ve updated this blog as to my conflict with Parkinson’s disease. I say ‘conflict’ for every day is like fighting the dragon; win, lose or draw. Since I last wrote about PD, I’ve attended a 28-day clinical trial and moved to St.Augustine, Fl. which required me to find another neurologist. And since April is Parkinson’s Awareness Month, this seems like a good precursor to next month’s activities. Continue reading Mr. Parkinson Rides Again
It’s been a while since I’ve talked about Parkinson’s Disease. The good news is I’m on my same basic medication I wrote about in Part 8- Medications… the Road to Levodopa and Part 9- Medications… All in Good Time. Though I know I will probably not decrease the amount of medication I take daily, its good not to have to increase. Continue reading Mr. Parkinson, “We All Fall Down”