Moving in quiet desperation, Keeping an eye on the holy land, A hypothetical destination, Say who is this walking man. -James Taylor
Its been a while since I’ve posted anything about Parkinson’s disease for this blog. Can you beleive it’s been 6 years that I was diagnosed! My page on PD has a complete list of post consecutively written almost as fast as changes were occurring in real time in my life. Thank you for reading those early writings for they make up the heart and soul of this blog. As for as I’m concerned, my personal goal in writing is to always leave the reader with words more positive than when they started reading. For what is life if not to lift us, one and another to all that heaven will allow.
Having PD can result in numerous conditions the body must cope with. Since Parkinson’s is an absence of dopamine in the body and dopamine is used everywhere in the body thus no two shades of the disease are ever totally the same physically and mentally. And symptoms can show up any day or take years to develop.
I became aware of Parkinson’s when my right hand began to shake violently, an effect called tremor. Drugs were’sable to control it. What keeps me occupied at this particular junction is the ability to walk or a lack of it as it was before my body becomes stiff. Now loosening the body is every day, a day-long practice. These exercises are like medicine since my abilities with my legs and feet have seriously been compromised. My feet shuffle along as I balance myself with a cane. It requires constant mindfulness to walk like a normal person, so mindfulness is more than just a Buddhist practice to me, it is the ability to walk. Yes, like what is normal for me.
There is one person I’m especially indebted to who is practically rewriting the book on walking with Parkinson’s and that is my physical therapist. She rocks, Thanks…jc
©jc2019-9… Image by Pixabay
“The Light shines in the darkness, and the darkness has not overcome it.” -John 1:5 Continue reading The Frozen Man… Chapter Six- Medication… Symptoms and Side Effects
Everyone thinks of changing the world, but no one thinks of changing themselves. -Tolstoy Continue reading Tales of the Frozen Man… Chapter 2- Lake Lynn
For some time now I’ve been employed in the process of writing a book on my life with Parkinson’s disease. In this process, my mind has discovered many forgotten incidences in this struggle, so much so that I felt my old blog post on the subject seem severely lacking. Also, I’m probably a better writer than I was back then. So I’ve decided to post excerpts from the book to bring my narrative up to date. These will appear once a week or so as my other writing also continue. Thank you- JC Continue reading Tales of the Frozen Man… PD and Me
“If you get the inside right, the outside will fall into place.”
When I wrote ‘Private Tremors of the Frozen Man’, I introduced a litany of symptoms prevalent to Parkinson’s disease that most people didn’t know or realized were just as prominent as a tremor in the hand. As time goes on, I discover new symptoms, some I experience and other I may or may not ever play host to. All in all, it’s an education for me and a vicarious one for you, the reader. As I’ve often said, when I was diagnosed back in October of 2012, I didn’t know anything about Parkinson’s except for the handshakes. Now I can see someone on the street and pretty much can tell if they have Parkinson’s or not. Continue reading The Frozen Man- Go to the Mirror
“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
It’s been some time since I’ve written about Parkinson’s disease. Not that it doesn’t want to be heard as it does make itself known but I tend not to give it a voice and I really should give it it’s due for awareness is the best medicine. This post also comes as a special request. So to my benefactors, here goes.
As with many other disorders, especially cognitive, outside appearances can take on an air of normalcy, like nothing is wrong. But as in the adage, don’t judge a book by its cover, don’t judge a Parkie just by Tremor. There’s more that goes on than one wants to admit, hidden in the depths of a brain running low on dopamine. Continue reading Private Tremors of the Frozen Man
Every experience, no matter how bad it seems, holds within it a blessing of some kind.
The goal is to find it. -Buddha
It’s been awhile since I’ve updated this blog as to my conflict with Parkinson’s disease. I say ‘conflict’ for every day is like fighting the dragon; win, lose or draw. Since I last wrote about PD, I’ve attended a 28-day clinical trial and moved to St.Augustine, Fl. which required me to find another neurologist. And since April is Parkinson’s Awareness Month, this seems like a good precursor to next month’s activities. Continue reading Mr. Parkinson Rides Again
The darkest stretch of night is just before the dawn. So one cannot help but be enthralled by the silent majesty in a cold dark winter’s morning; Brother Moon sits overhead in a pool of stars with Venus, the Virgo queen, in her disguise as the morning star, hovering close behind just as the eastern horizon gives birth to the first panes of light emerging from the sun. Continue reading Winter’s Morning Sky